Musings of a Medical Zebra

A Zebra Speaks

Hello Again


February 22nd, 2010 Posted 5:17 pm

It has been a long time since I have posted. Right now, among other things, I have a bad sinus infection. I’m fairly ill at the moment. I hope to be feeling better by next week. Until then…

Posted in EDS Stuff

Sleep Study Results


January 9th, 2010 Posted 1:42 am

It took us close to 30 minutes just to get out of our driveway Thursday afternoon. Over five inches of snow fell the previous night. The snow plow didn’t exactly do a stellar job with the streets, so we managed to get stuck in the road adjacent to our house.  When we arrived home, we were both pleased to find that our neighbor — who drives a snow plow for the county highway department — had plowed my parking spot. Living in a small town has its perks. Anyway, back to the reason for this post — my sleep study results.

My pulmonologist — the doctor that ordered the test — said that I have Periodic Limb Movement Disorder (PLMD). He prescribed Requip. Since he is stepping me up on the drug over a three week period, I won’t know how well the drugs works for a little while.  The hope is that it will eliminate or  significantly decrease my daytime sleepiness. Some of my medications interfered with the sleep study, making it impossible to determine if I have narcolepsy. If the Requip doesn’t work, my doctor is going to treat me for narcolepsy.

In the mean time, I’m supposed to limit my naps to 20 minutes and I’m supposed to go to bed and get up at the same time each day — no matter how much sleep I get. Needless to say, the next three weeks will be interesting. I am crossing my fingers that the Requip does the trick. Wish me luck, pray for me, or whatever it is that you do.  🙂

Posted in EDS Stuff


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December 31st, 2009 Posted 7:28 pm

I have been so tired these past few days that I have barely been able to stay awake. This weekend we will be traveling a couple hours from here to see my husband’s family. I am hoping I will be able to stay awake long enough to visit. We’ll see.

Next week I meet with my pulmonologist to talk about the results of my sleep study. I cannot wait.


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December 20th, 2009 Posted 8:21 pm

I’ve been having dizziness episodes lately. At the same time the dizziness kicks in, my feet and/or arms briefly go numb. It’s a strange feeling — quite disturbing. I hope it goes away soon.

Holiday Dread

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December 19th, 2009 Posted 6:54 pm

All EDSers that are at least mildly dreading the upcoming holidays please raise your hands. Is your hand raised? Mine is.

I enjoy visiting with family and friends…when I’m feeling up to it. Lately — if you’ve been following my blog you already know this — I haven’t felt up to it very often.   For the past few months, about the only thing I’ve felt like doing is sleep. When I’m not sleeping, I spend the bulk of my time fighting sleep or trying to keep my mind off of sleep.

I am exhausted. I am dizzy. I am in pain. All of these things indicate that it isn’t in my best interest to ride 2.5 hours one way to visit as many people as we can in 24 hours just because it’s a holiday.

Ideally,  folks would come up here once in awhile — maybe not on an actual holiday, but sometime near a  holiday. Unfortunately, it’s hard enough to get some folks up here yearly, let alone twice in one year. Maybe someday…I can always hope…

Another Palm Pre — Yay!

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December 19th, 2009 Posted 2:07 am

So last night we went to Best Buy and picked up another Palm Pre. (The lady my husband spoke with from Sprint informed him that we could get one cheaper through Best Buy.) Since I backed up the information from the broken Palm Pre — which is now listed on Ebay — I didn’t have to re-enter my phone numbers or the stuff in my calendar. 🙂

Posted in Misc. Stuff

Palm Pre

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December 16th, 2009 Posted 5:21 pm

I finally got around to replacing my Sprint Mogel on Monday. I bought a Palm Pre. The phone is awesome. Unfortunately, I accidentally dropped it on the way home from the post office yesterday. The screen cracked and the phone is now useless. Sprint said they can replace the phone…for $600. I am displeased by this.

Posted in Misc. Stuff


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December 12th, 2009 Posted 9:38 pm

I did a sleep study Sunday night through Monday. My sleep was repsentative of a typical night at home. Monday morning, they woke me up at 6:30am. Beginning at 8:30am, I took a series of five naps lasting 20 minutes each. Just as I would get comfortable, someone would walk in and wake me up. I wasn’t allowed to fall asleep in between naps; the naps were two hours apart. I was there until 4:30pm. I am glad it’s over and I’m looking forward to getting the results. I should hear something in the next few days.

Posted in EDS Stuff

I will be back…

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November 11th, 2009 Posted 12:26 am

soon. I haven’t been feeling well recently.  As a result, I’ve been doing a very poor job of keeping up with this blog. I will try to post an update in the next few days. Hope to see you then. 🙂



October 31st, 2009 Posted 9:36 pm

I’m exhausted.