Musings of a Medical Zebra

Archive for December, 2009

Sleepy…

I have been so tired these past few days that I have barely been able to stay awake. This weekend we will be traveling a couple hours from here to see my husband’s family. I am hoping I will be able to stay awake long enough to visit. We’ll see.

Next week I meet with my pulmonologist to talk about the results of my sleep study. I cannot wait.

Dizziness

I’ve been having dizziness episodes lately. At the same time the dizziness kicks in, my feet and/or arms briefly go numb. It’s a strange feeling — quite disturbing. I hope it goes away soon.

Holiday Dread

All EDSers that are at least mildly dreading the upcoming holidays please raise your hands. Is your hand raised? Mine is.

I enjoy visiting with family and friends…when I’m feeling up to it. Lately — if you’ve been following my blog you already know this — I haven’t felt up to it very often.   For the past few months, about the only thing I’ve felt like doing is sleep. When I’m not sleeping, I spend the bulk of my time fighting sleep or trying to keep my mind off of sleep.

I am exhausted. I am dizzy. I am in pain. All of these things indicate that it isn’t in my best interest to ride 2.5 hours one way to visit as many people as we can in 24 hours just because it’s a holiday.

Ideally,  folks would come up here once in awhile — maybe not on an actual holiday, but sometime near a  holiday. Unfortunately, it’s hard enough to get some folks up here yearly, let alone twice in one year. Maybe someday…I can always hope…

Another Palm Pre — Yay!

So last night we went to Best Buy and picked up another Palm Pre. (The lady my husband spoke with from Sprint informed him that we could get one cheaper through Best Buy.) Since I backed up the information from the broken Palm Pre — which is now listed on Ebay — I didn’t have to re-enter my phone numbers or the stuff in my calendar. 🙂

Palm Pre

I finally got around to replacing my Sprint Mogel on Monday. I bought a Palm Pre. The phone is awesome. Unfortunately, I accidentally dropped it on the way home from the post office yesterday. The screen cracked and the phone is now useless. Sprint said they can replace the phone…for $600. I am displeased by this.

Sleep…

I did a sleep study Sunday night through Monday. My sleep was repsentative of a typical night at home. Monday morning, they woke me up at 6:30am. Beginning at 8:30am, I took a series of five naps lasting 20 minutes each. Just as I would get comfortable, someone would walk in and wake me up. I wasn’t allowed to fall asleep in between naps; the naps were two hours apart. I was there until 4:30pm. I am glad it’s over and I’m looking forward to getting the results. I should hear something in the next few days.

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