Iron Infusions
I found this post in my drafts. It was written on 9/15/2011, but apparently I never got around to posting it. So, here it is…
Over the past couple of months I’ve received seven iron infusions. My ferritin and iron levels were very low. I do not tolerate oral iron, so IV iron was my only option. Luckily I am not scared of needles and I’m an easy stick because I had to get a new IV each week. The first two forms of iron caused adverse reactions. The reaction I had to the second form was delayed by several hours. It caused my hematologist enough concern that he requested I see him the next day.
I wasn’t a stranger to the problem causing iron. I was infused with it three times — one infusion per week for three weeks. Everything seemed fine until four hours after receiving the third infusion. At this point, I began to itch.
At first, I didn’t think much of it. When the itching woke me up — this was roughly 9 hours after receiving the infusion — I decided to look in the mirror. My chest and back were mostly covered with a rash. It hadn’t dawned on me what was occurring, so I went back to bed. I managed to fall asleep . I woke up again, due to itching, around 7am. I got out of bed for the second time to look in the mirror. This time, my eyelids were quite swollen, as were my arms and legs. I loaded up on benedryl, and called my hematologist a couple hours later. He requested that I see him. By the time I arrived at his office — the next morning — the rash and swelling were gone.
Tags: allergic reaction to IV iron, Ehlers-Danlos syndrome patient, hematologist and Ehlers-Danlos syndrome, Iron infusions Ehlers-Danlos syndrome, IV iron Ehlers-Danlos syndrome, Super low iron
This entry was posted on Thursday, July 19th, 2012 at 5:10 pm and is filed under After Diagnosis - More Symptoms, Complications, Etc., EDS Stuff. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.