Musings of a Medical Zebra

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Archive for November, 2014

No PET Scan; Prolactin High

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November 8th, 2014 Posted 6:08 pm

I noticed a few weeks ago that I was retaining a fair amount of fluid. When I weighed myself, I learned that I had gained over 15 pounds. Given that my pain and fatigue have been worse lately, it made sense that my prolactin was high.

When I saw my internist on Thursday, he took one look at me — I am clearly retaining fluid in my face — and commented that my prolactin had to be high. He ordered some labs, which I will get drawn in a couple days, and told me that it will take 5-10 days to correct my prolactin once we get my labs back and my medication is tweaked. Given that prolactin blocks pretty much everything, my thyroid, among other things, is likely out of wack. He also told me to put off the PET scan until we get my prolactin level back to normal because the high prolactin may interfere with the scan, making it appear as though I have health problems that I actually don’t have.

Hopefully I can get the labs drawn on Monday and get my medication increased by the end of the week. I look forward to feeling better.

Posted in EDS Stuff

PET Scan

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November 3rd, 2014 Posted 11:54 pm

It occurred to me as I was leaving the pain clinic today that I haven’t posted for a really long time. Rather than catching up on everything that’s happened in the past couple years, I thought I’d talk about my appointment today and leave the rest for another post.

I had a follow-up appointment with my pain management doctor this morning. My rib dislocations became more frequent last year. I now have a couple ribs that are chronically dislocated – – one is stuck under my right shoulder blade and the other two, both are on the right side, are located in the middle of my rib cage. As you can guess, this has lead to a fair amount of pain – – so much so that I rarely feel well enough to leave the house anymore. Though I am taking a pretty good dose of pain medication, my pain level averages a 7/10 daily. Unfortunately there aren’t many medication options available, as I have already tried most of them – – this is something I find scary.

Today my doctor decided to order a PET scan, which I am scheduled for next week, to get a better look at my ribs. We’re hoping it will provide us with new information – – what I am not sure – – so that my pain can be dealt with more effectively.

On that note, I think I’ll end this post & get some sleep. Goodnight.